Good Morning All!
I haven’t been online in a while. Cluster Headache cycle is “out of control”. Four nights of uninterrupted sleep, NOT consecutive, in the past seventy three nights. My Neurologist is at her wits end. We are attempting to get me on high flow oxygen with a “non re breather” mask to use during an attack but are battling with my insurance over it. They claim that they won’t cover O2 for cluster headache treatment. It’s known to work to lessen the severity of an attack. She prescribed me Lithium, which I don’t really want to take and Sumatriptan nasal spray.
I can’t do the Sumatriptan injections because of prior stroke history. Been on the highest dose possible of Verapamil for a few years and actually went into remission but that has stopped working.
There is something that has proven to end an attack and is being used worldwide but , let’s just say, it’s not very legal in the U.S.! A low dose sublingual derivative of Psilocybin (magic mushrooms).
Ive been getting a lot of support from ClusterBusters, a forum devoted to headache sufferers.
Angela left for the airport at 3:15 this morning to catch the early flight to Florida to visit with her Mom this weekend then, on Sunday, she drives to southern Florida for business. Then to Chicago and home again next Friday. It’ll be a long week without her here but it’s better if she’s not here when I’m having nighttime attacks.
Sorry for the long “rant”/“sob story”. Just helps to talk about it some times.
Hope Y’all have a great day.
P.S.
Ive fallen behind on my chores. If anyone wants to come and blow leaves, you’re welcome to! :p