Looking for postcards

[saintsreturn]

William S
1096 Stillwater Ave
Deltona, FL 32725

Thanks much

Love the back story and sad i missed this on the front end. That said, I will put the word out. Tell the little man to keep fighting and smiling!

 

[Brett S]

I am in! @Brett S ,can you tell us a little more about him like interests and hobbies ? I travel about once a Month, I will try to send him a postcard from each city I go to as long as it is not a repeat.

That’s awesome, thank you very much. As far as his interests go, he loves sports, especially football. He’s into video games too, things like fortnight and Minecraft. He’s been spending a lot of time watching YouTube recently, since it’s hard to do much else right now. He likes a lot of the YouTubers like Mr. Beast, Good Mythical Morning, and DanTDM as well as some of the other gamers.

He likes animals, so animals are good. He likes super hero movies and Marvel. We have tickets to see the new Avengers movie on Saturday, which he’s pretty excited about. It’s going to be the first time we’ve tried to go to the theater since all this happened, so that should be interesting too. He loves the Star Wars movies as well.

Really, even just postcards from different cities and different countries are great also.

Thanks again to everyone for all the postcards

 

[nautical_nathaniel]

Thanks @nautical_nathaniel ! I'm not exactly sure why I didn't think of calling more attention to this thread with the "#whoever" feature. I suppose this is what happens on 3 hours of sleep for the past two days! Anyway, thanks again!

Happy to help!

 

[t blackwell]

I am praying for your son and your family.

 

[Captain Quint]

That’s awesome, thank you very much. As far as his interests go, he loves sports, especially football. He’s into video games too, things like fortnight and Minecraft. He’s been spending a lot of time watching YouTube recently, since it’s hard to do much else right now. He likes a lot of the YouTubers like Mr. Beast, Good Mythical Morning, and DanTDM as well as some of the other gamers.

He likes animals, so animals are good. He likes super hero movies and Marvel. We have tickets to see the new Avengers movie on Saturday, which he’s pretty excited about. It’s going to be the first time we’ve tried to go to the theater since all this happened, so that should be interesting too. He loves the Star Wars movies as well.

Really, even just postcards from different cities and different countries are great also.

Thanks again to everyone for all the postcards

Thank you for sharing this!

Positive vibes, prayers, and postcards coming.

 

[Brett S]

Thanks again for all the postcards and the support. I hope my mailbox can fit all the post cards that are on their way

If you are interested in learning more about AFM and have some time to kill here are a couple of videos that I thought were pretty interesting:

This first one is from the Dr. Oz show from earlier this year. To be honest, I don’t particularly like the video and think he way over sensationalized it, but it is interesting to see AFM in the current media.



This second one is from a medical symposium last fall and is much more technical and detailed. It’s also fairly long, but if you have some time it’s pretty interesting to watch.

 

[lagatbezan]

My thoughts and prayers for his full recovery!

 

[Captain Quint]

I actively sought some this morning to no avail.

I think I'll check some truck stops and maybe Hallmark?

 

[UCF Alum]

You say the boy wants postcards?
Oh, I have post cards coming his way...

Plenty.....

 

[Mystical_Knight]

So this is kind of a long story, but on December 30th 2018 the life of my son changed drastically in a period of about 3 hours.

My 13 year old son was at his mother’s house and at about 5:30PM he offhandedly mentioned that his hand felt kind of funny, like it was asleep. No one thought too much of it and a little while later his mom asked him to do some chores. He said that he felt like he couldn’t get up off of the couch. His mom thought he was just being lazy and told him that he needed to get moving. He managed to get up, but he was very unsteady as he walked and kept bumping into things. As this point she started to get concerned and decided to take him to the hospital. They got to the hospital at about 8:30PM and at that point he could no longer feel or move anything below his shoulders.

They ran a number of scans and tests at the hospital and then at about 3:30AM they transferred him to a large childrens hospital in Orlando. He spent most of January in the hospital, including two weeks in the ICU and was diagnosed with AFM, which is a reasonably new and rare disease. There were less than 200 cases in the US last year.

After the hospital he spent several weeks at an inpatient rehab hospital and now he’s home with his mom. Over the last few months he’s been slowly regaining some movement and sensation in his hands and arms. He’s not quite at the point where he can feed himself yet, but recently he’s been able to move enough to be able to push buttons on a TV remote and to be able to touch his face when it itches. This is actually a pretty huge quality of life improvement for him and the people taking care of him. For quite some time literally needed someone by his side 24/7 because he couldn’t do anything for himself. He needed someone to feed him, someone to scratch his face when it itches, someone to change channels on the tv for him, etc. He also now has a powered wheelchair that he can control with his head which also helps give him a little bit more independence.

We are still not sure exactly how much he will regain, but we know he has a very long and hard road ahead of him. The doctors believe that he will continue regaining some movement and sensation over the next year, but no one can really say exactly how much he will get back. They also say that after a year patients typically plateau, so whoever he is at the beginning of 2020 is likely where he will stay.

Through all this we are extremely thankful that he is getting movement back in his arms and hands. Some people with this disease remain a quadriplegic and having the ability to control his arms and hands is pretty huge. We are also very thankful that the disease didn’t progress any further. It’s very common for the disease to interfere with breathing and some patients need to be on a breathing machine. Luckily he never went that far.

We are very hopeful that we will continue to see more gains with his hands and arms and we really hope that he will start to get control over his legs as well. Just today while we were at the neurologist’s office we believe that we may have seen a little voluntary twitch in his right leg, which is the first time that we’ve seen any voluntary movement in his legs at all.

So with that background, one of the things that he really enjoys is getting postcards from around the country and around the world. His aunt had posted my address asking for postcards a few weeks ago without telling us and over two or three weeks he got 20 or 25 postcards in the mail. Seeing the pictures of different places and reading the little notes people wrote always made him smile.

So if you’re still reading this and have a few minutes to send a post card I know that he would be really happy to receive them. His name is William and postcards can be sent to this address:

William S
1096 Stillwater Ave
Deltona, FL 32725

Thanks much

I am a letter carrier and will definitely be sending a postcard. I am in Kissimmee though so it won’t be super exotic or anything. Also shared the thread to one of my closed postal groups so hopefully that will help get him even more! Stay strong William and good luck with everything Brett

 

[jk_s124]

Will absolutely send out a postcard. Best wishes to your son, and to you and your family. I can’t even begin to imagine.

 

[Spanky05]

So glad you put this out there to help add some more happiness into your kiddo's day!

Keep up the good work, Dad.

 

[Daniel@R2R]

Just bumping this up!

 

[Joe BBC]

 

[Joe BBC]

All done. This is why I enjoy reefers, we care.

 

[Brett S]

All done. This is why I enjoy reefers, we care.

Thanks so much. Remember to post those pictures on the giveaway thread too so you can get an entry in the contest

 

[Joe BBC]

Thought this was it? I will look again...

 

[Reeferon]

My thoughts and prayers are with you, your son, and your family. I’m sending you a postcard from Boston.

 

[Captain Quint]

I'm pretty stoked...my daughter and her husband went to our zoo in Asheboro NC yesterday and picked up a couple of cool postcards which are holograms...I won't be able to send until Tuesday as my daughter is having extensive surgery in the morning though...

My wife has to go to Boston for meetings in a few days and I'll have her pick some up as well.

 

[Tickybear]

He is brave and strong. God bless him,you and the rest of your family because it's a a struggle for all of you.
William is definitely a fighter!! May God help him win this fight!